RISG.ORG
Reiter's Information & Support Group Inc.
Q & A's, Medical news and hundreds of members.
Spondyloarthropathies: Reactive Arthritis (Reiter's Syndrome), Ankylosing Spondylitis, Psoriatic Arthritis, Inflammatory Bowel Disease, and all they may bring. Uveitis, Iritis etc.
Ankylosing Spondylitis AKA: Morbus Bechterew, Marie Strumpell. May also be referred to as Spondyloarthritis or Spondylitis.
Reactive Arthritis AKA: Reiter's Syndrome, Arthritis
Urethritica, Blennorrheal Idiopathic Arthritis,
Conjunctivo-Urethro-Synovial Syndrome, Feissinger-Leroy-Reiter
Syndrome, Polyarthritis Enterica
Ruhr's Syndrome, Urethro-Oculo-Articular Syndrome, Venereal
Arthritis, Waelsch's Syndrome.
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RISG.ORG Reiter's Information & Support Group Inc. |
Q & A's, Medical news and hundreds of members. |
We are a nonprofit organization created and maintained by volunteers for the benefit of all those who suffer from these ailments and their loved ones.
But we are sustained by your tax-deductible contributions. Thank You!
| Order or Print Brochure | Link to RISG.ORG |
| Information | Support |
Mission Statement.
To give needed Information and Support to all with one or more of the Spondyloarthropathies, their families and those closest to them by relaying any and all known factual medical information on these ailments.
To give access to all with these ailments to a private and public forum via the Internet for the purpose of corresponding with one another and the RISG membership.
To equip and advise select members who are willing, able and show a sincere desire to expand RISG beyond the Internet with needed materials and by-laws to do so.
To do everything in our power through organizing programs to help those with these ailments to help each other.
To let all with these ailments know they are not alone.
Information
| Spondyloarthropathies Explained | Spondyloarthropathies Symptoms Explained. |
| Order or Print RISG.ORG Brochure. |
We do not sell/give out the names, email addresses or any other personal information of our members/subscribers.
RISG.ORG Archives. Our archives hold over 50,000 messages searchable by word or phrase. These are message sent through our information and support communication forum for the Spondyloarthropathies.
RISG.ORG Current News Search. A list of links and excerpts to current published news articles on the web about one or more of the Spondyloarthropathies and related subjects.
To receive a weekly copy of this list subscribe below. To see the last two weeks with archives click here
or send a email to: risgcn-subscribe@yahoogroups.com
Go to RISG Current News Yahoo Group Home Page.
Unsubscribe: risgcn-unsubscribe@yahoogroups.com
Search by word or phrase.
You must be a member above the age of 13 and have a current password before you can access the RISG-L archives.
You do not need a password to search our Medical Literature or Current News Searches.
RISG.ORG Link Library. Over 200 links in 25 categories to other resources on the web for people with one or more of the Spondyloarthropathies.
On The Road Again a newspaper article in the Longview Daily News on how RISG.ORG began and the Spondyloarthropathies.
As many of us know there is little information out there about Spondyloarthropathies. The progression, cause and remission are largely a mystery. These polls are designed to allow those of us with one or more of the Spondyloarthropathies to help each other understand as much as possible about our inflictions. This is a place for each of us to contribute with anonymity while helping to compile the desired information for our fellow sufferers. These polls are the sum of the experiences of the visitors who participate. Most people in remission don’t seek information and support, at lest not like those of us who are not. Thus these polls may be skewed in the direction of those who are chronic or at least not in remission.
Some of the questions will no doubt seem to be nonsensical. But given the limited understanding of the Spondyloarthropathies the numbers even if pointing to the obvious will give us the definitive.
These polls should only be taken by people with one or more of the Spondyloarthropathies or someone close to them that knows their circumstances.
Spondyloarthropathy Polls
Reactive Arthritis (ReA) AKA: Reiter's Syndrome polls Ankylosing Spondylitis. (AS) polls
Inflammatory Bowel Disease (IBD) polls Psoriatic Arthritis (PA) polls.
Conjunctivitis, Iritis, Uveitis polls Keratoderma Blennorrhagica. (KB) polls
Some of the poll questions.
Are you Male of Female? What’s your diagnosis? Nationality/Ethnic group? How many of you are HLA-B27 Positive? Using this scale how would you rate your pain on a typical day? Do you believe that stress can trigger a flare of your disease? Do you believe that a person truly in chronic pain can or cannot become addicted to pain medications? Do you have Sleep Apnea? Immune System and Appendix. This poll is to determine the most common infections for Reactive Arthritis sufferers.
This poll in particular maybe skewed a bit because people in remission are not generally those visiting and taking these polls. Statistics shows most afflicted with these diseases do go into remission. How many of you are in remission and for how long?
You can receive a copy of our RISG FAQ (frequently asked questions) in these languages.
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English You can receive a copy of our RISG FAQ (frequently asked questions) about both RISG.ORG and the Spondyloarthropathies in minutes by sending a blank email to faq@risg.org Español (Spanish) Usted puede recibir una copia de nuestro FAQ de RISG (hecho con frecuencia preguntas) sobre el Spondyloarthropathies en este lenguaje en minutos enviando un email en blanco a faqes@risg.org Français (French) Vous pouvez recevoir une copie de notre FAQ de RISG (fréquemment
posé des questions) au sujet du Spondyloarthropathies en ce langage en
minutes en envoyant un email blanc à
faqfr@risg.org |
Deutsch (German) Sie können ein Exemplar unseres RISG-FAQ (Fragen häufig
gestellt) über das Spondyloarthropathies in dieser Sprache in den Minuten
empfangen, indem Sie ein unbelegtes email zu schicken
faqde@risg.org Italiano (Italian) Potete ricevere una copia del nostro FAQ di RISG (fatto
frequentemente le domande) circa lo Spondyloarthropathies in questo
linguaggio nei minuti trasmettendo un email in bianco a
faqit@risg.org Portuguese (same) Você pode receber uma cópia de nosso FAQ de RISG (feito |
Support
No one can understand the Spondyloarthropathies better then those of us who have them.
No one can understand what you're going through better then those of us who are there.
Since July of 1995 there have been thousands of people like you with one or more of the Spondyloarthropathies that have visited RISG.ORG. You can meet hundreds of them here.
RISG.ORG (including our public and private communication forums) are and will remain free of charge!
When you join our list server you'll have access to our archives. Our archives hold over 50,000 messages. These messages are on all aspects of the Spondyloarthropathies, symptoms, medications and what we can expect. These are the discussions we have had through our communication forum over the last several years. They are all searchable by word or phrase.
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All praise to the God and Father of our Master, Jesus the Messiah! Father of all mercy! God of all healing counsel! He comes along side us when we go through hard times, and before you know it, he brings us alongside someone else who is going through hard times so that we can be there for that person just as God was there for us. 2 Corinthians 1:3-4, (The Message)
Requirements of membership to the RISG.ORG communication forums. We ask that: You or someone close to you has one of the Spondyloarthropathies or you are in the medical field. You understand that the RISG files and message archives are not to be copied or reproduced in any way for anything other than your own personal use. "You understand that there are members of this group that don't think much of people that only know one way to spell a word". Will Rogers. Paraphrased |
We have three communication forums. All are free of charge.
Subscription only and Public (all free of charge).
1. Our most popular and frequently used forum. Private. Membership only. Moderated. RISG-L Yahoo Group List Sever. You'll have the choice of Digest form (all the days postings in one email) or Individual messages (as each are posted).
or send a email to: RISG-L-subscribe@yahoogroups.com
Go to RISG-L Yahoo Group Home Page.
Unsubscribe: RISG-L-unsubscribe@yahoogroups.com
GENERAL OVERVIEW OF MAILING LISTS What is a Listserver? - A discussion group operating by E-mail. "Listserv's" or "Listservers" allow Internet mail users to place themselves on electronic mailing lists to interact with others who have similar interests in a more personal format. How a Listserv or "List-Server" Works - Messages are automatically distributed by E-mail from one party to all members on the list. When you subscribe to a list, your name and e-mail address is added to the list. Thereafter you will receive postings sent to the listserv by all other subscribers. Our list is moderated.
Public Forums. 2. RISG.ORG Newsgroup. Public. NOT Moderated.Access to the RISG.ORG Newsgroups as well as searching google newsgroups for commonly used spondy search terms. To access via your web browser/google alt.support.arthritis.risg-spondy.info or via your News Server alt.support.arthritis.risg-spondy.info
3.
RISG.ORG Public Chat
Room. Public.
NOT Moderated.
Warning: Our newsgroup and chat room are NOT moderated. If you access most newsgroup or chat room including ours you are posting to public forum and your post can be read and responded to by anyone on the net. RISG.ORG can not control the legitimacy or accuracy of any information sent through our newsgroup or chat room. |
Our list server requires a email address. Most public libraries have computers and free internet access. You can register with our communication forums using any of the free web email boxes available.
Here are two. Hotmail at: http://www.hotmail.com or Yahoo at: http://mail.yahoo.com/?.intl=us
We reserve the right to refuse, remove or restrict anyone's membership or posts to the RISG.ORG private or public communication forums at anytime. All aspects of RISG.ORG is and will remain free of charge!
A Web/NetRing is a community of pages with related content, organized into a circular ring. Each page in a ring has links which let visitors move to an adjacent site on the ring, summon a ring index, or hop to a random site. Web/NetRings let web visitors quickly and reliably find sites with related subjects.
The BrainTalk Communities WebRing is a collection of patient and caregiver created websites.
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Send mail to rick@RISG.ORG with questions
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